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So apparently this is the week to talk about invisible diseases/conditions. I don’t know how invisible my diabetes is … the insulin pump is kind of obvious, and I don’t try to hide when I’m checking my blood sugar. On the other hand, it’s not like my pancreas has fallen out in the middle of a convention panel or anything like that.
I’ve chatted about the disease a bit already here and here. With a doctor’s appointment set up for this afternoon, I got to thinking about the cost of the damn disease.
I’m very fortunate to have good health insurance, which means most of that cost is actually invisible to me. The insurance is one of the reasons I took my day job, and it’s the biggest reason I’ll likely never be able to quit and write full time. But recent events got me thinking about how much diabetes would cost if I were ever to get laid off or lose those benefits.
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Blood sugar test strips (testing 6-7 times/day) : $200/month
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Lancets for blood tests: $63/month
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Insulin pump infusion set: $116/20-day supply
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Insulin pump reservoirs: $33/20-day supply
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Insulin (this one is a guess): $100/month
That’s $586.50 per month, and that’s before we get into doctor visits (every 3-4 months), bloodwork (also every 3-4 months), and occasional costs like replacing the insulin pump if it breaks ($1000?) or, if things go really badly, a trip to the hospital.
If I were covering the costs myself, there are changes I could make to save money. I could test my blood less frequently, switch from the pump back to multiple daily injections, not see my doctor quite as often, reuse lancets and syringes, and so on.
Of course, the more I skimp on the daily care, the more likely I am to end up in the hospital due to complications…
It’s not something I think about very often, but it scares me a bit, and I very much resent that it takes away my option to try to go full-time as a writer.
Mirrored from Jim C. Hines.













Comments
I don't understand how people can believe that insurance is somehow optional and that those that can't afford it shouldn't have it. It really feels like backhanded eugenics to me. If your too poor to pay for proper medical care then there's something wrong with you and you should just die and make way for the "better people."
Re: health care costs... as someone with a chronic (expensive) condition as well, I definitely resent that it will always keep me in a position to need a partially job-funded health care plan. :( (Working for a nonprofit the health plan is only partially funded, but it's great for a small nonprofit, and I feel very fortunate. I couldn't get by without it.)
I don't know what's fair. All I know is it pisses me off.
And hey, if you win, that just means you have an extra book to give someone for Christmas, right?
I know - we talked about this on my journal and your amazing offer is so appreciated.
What sucks is that my husband *has* good insurance. If we were without it, I would be in much worse shape, and probably have to get divorced/use public assistance just to be able to control one of my chronic illnesses (Texas allows 3 prescriptions a month on Medicaid. Yes, three. We learned that when my daughter with cancer was told that she couldn't fill all of her chemotherapy meds and which ones did we want.)
Fail.
Agh! :(
*hugs*
Such a frustrating situation. :(
I had a similar reality check with one of my wife's knee surgeries (out of six so far in the past few years). There was an insurance mix-up and we got sent a bill for five figures. The insurance company did end up covering that, but they almost ended up having to cover my heart attack too.
I do think it would be helpful to see the sort of numbers people are facing. Heck, even with insurance, the bills can quickly become unmanageable.
But I definitely think it would be a good thing for folks trying to make it in artistic careers. And I keep reading about writers who do write full time, who make good money, who end up getting wiped out by a single unexpected health problem. That doesn't seem right to me.
I really don't understand why Congress, et.al. are so afraid of universal health care instead of all the silly insurance reforms they keep arguing about. Unfortunately, with all the brangling going on in Congress, nothing will be done in time to help a lot of us who are out of work.
/rant
I'm diabetic, but I'm on diet restrictions and oral meds, so mine is virtually invisible to others.
I have no medical insurance currently because I was displaced from my permanent job by the economy and am working temp accounting jobs right now. They pay well enough, but you're right. Being diabetic is expensive. People don't see that.
I can still get my meds thanks to Walmart's $4 prescriptions, but in two months, when my last refill is done, I'm not sure what I'll do. I can't afford the doctor appointments and blood tests. I haven't been to see my doctor since February 2008.
I have no test strips or lancets because that prescription ran out quite a while back. That's very frightening, as I'm sure you can imagine.
To think of people worse off, to think of all the conditions we can't see, but that people suffer with...it's mind-boggling, isn't it?
We are a *much* sicker people than I ever realized growing up :-P
Very scary. Is there any way that the doctor could call in a new prescription without an appointment? Mine has done that in the past for me when I run out of refills.
These idiots demonstrating against healthcare reform have no idea what the hell they're talking about. I'm one layoff away from bankruptcy and a death sentence. So are many of them.
All BS aside, I hope you're staying healthy.
Right now my biggest fear is that when my state elects a new governor, he may decide to fire everyone over a certain level or so many years close to retirement, just to put his politically connected cronies in a decent paying job. Then my son's insurance is gone.
My mom didn't have insurance at one point. She's on a cocktail of meds for bipolar, anxiety, manic depression, and a few other things I'm sure she hasn't mentioned, plus her husband takes meds for something or other. I remember at one point they were spending about $600 every week or two on just medication. Plus they both smoke two packs a day (healthy, right?). I probably don't need to tell you, but they don't make a lot of money, and they don't own their own home. They've moved a lot in the last decade just trying to get by.
I'm very lucky with my insurance. All preventative care is 100% covered, which generally prevents or helps detect major problems before they become major wallet problems. My guess is that's what the gov intends with this universal healthcare thing... get people in before they get seriously ill so they DON'T get seriously ill, therefore saving money.
Talk about pre existing conditions.
::Re-reads::
That's ... that's kind of insane.
I've never heard of the 811 system you're describing. Assuming folks don't abuse it, that sounds like it could be a really helpful setup.
Frankly, everyone should have our insurance.
I grew up on welfare, and Medicaid was a nightmare in the 80s. My mom had lupus and was bipolar as well. To save costs, Medicaid had her rheumatoid doctor prescribing her bipolar meds. This doctor OD'd my mom on lithium; those weeks are some of the worst memories of my life.
I firmly believe that health care needs to be reformed. I firmly believe that there must be a public option. However, any health care plan--government run or not--must avoid making the sort of mistakes that led to my mom's overdose.
It would be fascinating to see that happen. Imagine companies not being able to hire staff because people were already insured? They might have to offer actual perks!
So many people protesting against health care reform have no idea *how much* treating a disease as common as diabetes *costs*; it's not just the insulin, and the test strips, and the doctor's visits: it's regular visits to a qualified eye doctor to monitor the health of your eyes to make sure the diabetes doesn't blind you, trips to a renal specialist to check your kidneys, and so many other thigs.
But we as a nation are (and have always been) in desperate need of a National Healthcare system. I remember during Clinton's first campaign, he talked about that selfsame need, and he mentioned "spiraling costs," etc.
Meanwhile, we've had 16 years of inflation, and healthcare in particular has continued to spiral. Anyone with a chronic medical condition is hurting. You're talking in the case of diabetes about $6000 a year, just to stay healthy. There are programs that will give you a glucometer for free, but not the test strips, oh, no...
Then there are the folks with disabilities, or multiple medical issues (what doctors call "complex patients.")
On top of that, there's the simple person who's injured in an accident. A fall while hiking, a hit-and-run while biking, a misfiring nailgun while working on your house... Emergency care you might get, but what about followup? What about residual problems.
We're totally ignoring that, had the President's mother been able to get routine checkups, as well as treatment early and often, she might well be alive today, to see her son in the White House.
I understand where you're coming from. I feel cheated, but I guess it could be a lot worse.
It could be worse. That doesn't make it right.
Here in Australia, even with socialised Health Care (Medicare, here) and subsidisation, diabetic costs are huge. Cap that with other medical issues, and it makes for a hefty monthly bill (mine's close to $300/month, but only because I reuse my lancets until they go blunt enough to hurt, and my pen tip needles are free. It also doesn't include any other medications I might need over the month, like cold meds or asthma inhalers or pain relief or any vitamins or supplements I use to try and keep me healthier). I can't even begin to think what I would do if I needed an insulin pump (starting price $5,000, not subsidised at all, and with consumables costing upwards of $150 per month) Not to mention waiting periods for surgery and specialist visits that can can stretch into years (I waited five years on a waiting list to see an orthopaedic surgeon, then another three for the ankle reconstruction I had needed for more than ten years at that point). Or I could have taken out a personal loan for the $27,000 to pay for the surgery privately - as if any bank in their right mind would have given an unemployed, unemployable woman a loan for $27, let alone $27,000.
And don't get me started on Dental. It isn't covered by Medicare. I fractured a single front tooth a few years back, and it cost me $6000 for that single tooth to be replaced with a ceramic/titanium implant.
Socialised health care isn't the be-all and end-all. And if we could afford private health insurance, we'd get it, but the out-of-pocket expenses (co-pays) are often more prohibitive than staying on Medicare alone. My MIL had breast cancer in 2005. She has top tier private health insurance, and her out-of-pocket/co-pay expenses for her diagnosis, surgery, chemo and radiotherapy were well over $12,000 in the first year, and around $7,000 in her second year. When she got her itemised statement form her insurance company, she noticed the full cost of her treatments over that first year totalled more than $150,000. Now she has lymphodema, and her ongoing medication, treatment and laser therapy co-pay costs are somewhere in the $2000's after her insurance company pays their share.
Seriously, though, balancing both writing and family and your job, budgeting the time, is probably one of the best writing motivators.
Of course, typing more than 25 wpm,, and without too, too many errors, also helps ^_^ (this, from the Imperial Monarch of the Typo, of course).
I'm not personally paying that amount. With the coverage we've got here, I'm probably paying $20-$30 per month, though I wouldn't be surprised to see that go up a bit in the new budget year. But for anyone without coverage, it gets expensive fast.